PROSPEROUS PKU BLOGLooking for more insights?
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I responded to Palynziq two years ago in March. In this blog, I answer some common questions about how the diet transition went.
This decade has held big changes for medical treatment for the PKU community. Personally, it was also the decade that I decided to embrace all aspects of PKU. I learned that although PKU does not define you, it does develop you into the unique person you are.
One of the biggest factors that improved my diet management in my twenties was the introduction of foods from other cultures into my diet. It expanded my options and made staying on diet more enjoyable. Read about some of my favorites.
Creativity is necessary for cooking with PKU! In the 1980s, families had fewer ingredients to experiment with, but we were adaptable. We knew food was the key to our children’s health.
PKU treatment does change a lot in a decade. When I left home and had to manage my diet independently for the first time, there are some things I wish I had known. Here are some ways to prepare yourself or your PKU teenager for independence.
As a parent of PKU child, I have seen so many changes take place over the last four decades. Community has always been critical to success.
KEYNOTE SPEAKING SERVICES BY SARAH HOPE MARSHALL
Learn more about a variety of keynotes, workshops, trainings, and other programs Sarah offers empowering others to discover their authentic self. Help you and your team untap their true potential by overcoming barriers, transforming their leadership, and expanding cultural awareness through diversity, inclusion and more.
About Prosperous PKU
Prosperous PKU centers around wellness. But not wellness from a traditional, commercial sense in that you have to be or do something specific to be well, like lose weight or eat an organic diet. My name is Sarah Hope Marshall, and I created Prosperous PKU out of my lifelong battle with rare disease. Wellness as defined by conventional health beauty standards was never an option for me. However, my accomplishments have far exceeded what doctors told my parents would be possible when I was diagnosed at 11 days old. Prosperous PKU aims to pass along the lessons I learned about what it means to live well.
Wellness means self-awareness, discipline, stewarding what you have, living life with purpose, advocating for yourself and others, communicating well, internal leadership, and appreciating the diversity in this world. Wellness is a state of being, not a specific body weight. Wellness requires understanding your own values and making decisions from a place of authenticity. It is a state of prospering, which means to succeed in what you set out to achieve, as defined by your own internal goals, values, and visions.
Your Story Matters
You have lived a life full of experiences that are important and significant. All of us have days where life feels average, but that does not mean that you are.
Go download this short guide to be reminded why your story is so powerful (and it really is!)
Rare disease was a barrier for me. But through a lifetime of experience, I learned my medical condition actually held powerful lessons. Here, I pass these lessons along.
With this ebook, you will:
- Understand three key mindsets for overcoming challenges
- Get practical insight into how to move forward when you are stuck.
- Learn the difference between surface level barriers and unexamined barriers.
- Have space to journal your own insights to create change.